I had a meeting with Jackie Quintero, a marketing specialist for the Heart Walk, on Thursday morning. We ended up talking for two hours. She  was very touched by Lucy’s story and seems really fired up to learn more about pediatric heart disease and help us raise awareness of pediatric cardiomyopathy as well as other pediatric heart ailments. She is hoping to get Lucy’s story into the NW edition of Community Impact. She even thinks I should be a guest speaker at some Go Red for Women events! I am so very excited and hopeful that we can make a real difference for children with heart disease, particularly cardiomyopathy.

Chris and I are constructing a memorial page for Lucy on our website Operation Forever. We have finished the first part – a video tribute honoring Lucy and commemorating our life together as a family. I have wanted this just for myself ever since she died, but then we thought of the memorial page idea. We are also going to put the video on the Team Lucy page for the American Heart Walk. Part of the purpose of the Walk is to celebrate the lives lost to and saved from heart disease. We want to celebrate our amazing little girl and show everyone what they would be helping to preserve and honor through donating and signing up for our team. You can help children like Lucy. You can save other parents from saying good-bye to their children.

Most of all, though, this video comforts me. It reminds me what an amazing fifteen months we had with her. Lucy was so much more than her disease. Dilated cardiomyopathy did not define her. I can only imagine how amazing her future would have been, judging from this beginning.

Finally, we had our first prenatal appointment this week! I am about 8 weeks along and the due date is Feb. 28 (which means March 10, if this kid is anything like the other two). Everything looks great. Here is our first picture of “Baby Bean” as we have nicknamed him or her. The PA said babies like to snuggle up in the corner this early. I love to imagine him or her snuggling in there where I can keep them safe and warm.


  1. July 20, 2013 at 11:25 am

    Your daughter is beautiful and was clearly such a bright light. What a incredible way to honor her!

  2. Laura Smith said,

    July 22, 2013 at 12:51 pm

    I just watched the whole thing. Beautiful video. I remember you writing about the song Little Wonders, and I was glad I got to hear it in the video! I see why you love it so much. I love seeing Lucy’s precious smiles and all her spunk! Her personality just sparkled. What a privilege for you to be her mother. The bond you share with her will never be broken!

  3. kittymomma said,

    July 25, 2013 at 1:09 pm

    Thank you both so much.

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